Feb. 8th, 2017

cathugger: An orange-and-white cat facing to the left. The front of this face is fading into shadows. (Default)
I saw my dermatologist yesterday who, like the allergist, suggested that much of what was going on with my face was rosacea... except the dermatologist said he’s seen it be an issue for his mast cell patients.

Anyway, this doctor is really nice, talkative, enthusiastic about everything, and loves his job (or is really good at faking it). He told us about research he found suggesting that low-dose doxycycline has been beneficial to people with mast cell disorders and other immune issues. (Plus it’s known to help with the rosacea.) But yeah, since it’d be at a really low dose and is pretty harmless compared to other meds (at least from what he knows), I’ll be starting that really soon. I’ll also be continuing on the autoimmune drug (can’t remember the name) until things start to settle down.

During that appointment, I also learned that the skin takes in outside materials (idk I’m bad at words) similarly to digestive organs. I would say more but can’t remember much else, but whatever he said was interesting.

He also gave his opinions on the PICC line, surgery, Xolair, etc., and now I feel a little better about the current decisions. (PICC line, then surgery, then Xolair). Still wish I could research this stuff without getting overwhelmed, though. (Actually, the last few times I’ve researched things, I’ve felt surprisingly ok and in control. I think starting the task is the worst part.)
cathugger: An orange-and-white cat facing to the left. The front of this face is fading into shadows. (Default)
On another note, it looks like I’ll be getting the PICC line inserted tomorrow???! I don’t think I’m grasping this because I feel pretty indifferent about it, but I wouldn’t be surprised if that’s what kept me up last night.

That also means home health care will be coming over--into our messy trashy house--the day after to help us take care of it/set things up. Them coming over honestly isn’t the biggest deal to me right now. I’m more worried about showering (which is enough work already) and sleeping while getting the fluid drip. My geneticist instructed that I do a slow “gravity drip” 4 or so days a week so I could wake up more hydrated. Problem: My arm might have to be held in a certain position, and I don’t know how I’m going to handle that as someone who rolls around a lot in bed, sleeps in weird positions, and constantly deals with “jumpy legs.”

I guess I’ll just continue what I’ve been doing for the longest time and “see how it goes.”

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cathugger: An orange-and-white cat facing to the left. The front of this face is fading into shadows. (Default)
Ashley

June 2017

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