cathugger: Muichiro Tokito from Demon Slayer smiling. (Default)
My new sleep doctor looked at the sleep study I got years ago and said that we have to redo it. There’s no proof that it was done properly. Under her expectations, everyone who does a sleep study for things like narcolepsy have to wear a wrist band for two weeks in advance and have heavy restrictions placed on them and the room during the study. The study also has to be done when the patient normally goes to bed, which wasn’t done in my sleep study. She said that starting and ending the sleep study at the slightly wrong time could cause the patient to enter REM quickly during the naps. (I was actually wondering about this.)

It makes me wonder if my relatives were misdiagnosed as well. Maybe we all have a different type of hypersomnia??

The problem is, in order to retake the sleep study, I have to be off many of my meds for two weeks, which might not be an option right now. I’m apparently on a stimulant + REM suppressor anyway, and they both help a little, so that might be the best treatment I get anyway.

cathugger: Muichiro Tokito from Demon Slayer smiling. (Default)
I said I wanted more weird dream/sleep experiences. After all, they've been one of the few things I've been laughing at lately. I talked about one where I grabbed window shades to stop myself from falling, only to realize that, by then, I was awake and on my bed. Though there was a decent chance I could've broken the shades, all the laughing about it after was refreshing. So I sincerely wanted something like that to happen again.

Somehow, it took me a while to notice this, but often fall into a light sleep for short periods of time when comfortable enough. This is most noticeable when I'm texting someone, and a long line of random letters appears on my screen out of nowhere. It doesn't feel like I fell asleep at all. If anything, it feels like I zoned out for a second or two, but the number of letters that appeared on my screen pointed to it being much longer than that. 

I didn't think I was randomly falling asleep like this until after the sleep study. During the daytime tests, when I had to lie in bed for 10-15 minute segments while they read my brain waves, I didn't think I slept at all, but the people running the test kept walking in saying that I was asleep and in R.E.M. somehow. So I started paying attention to the random "zoning out" moments, and they're slowly starting to reveal some dream-like qualities. 

Anyway, this morning I started playing a game on my phone, and it didn't take long for me to start "zoning out." As I was slowly becoming more conscious, I noticed that my thumb was on the home button (which is also a fingerprint scanner, used for unlocking the phone and making payments and other important things) and assumed I was just unlocking my phone because it went into sleep mode or something. Then I realized that 1. I was still in the game, not on the lock screen, and 2. A MESSAGE JUST POPPED UP SAYING THAT I MADE A PAYMENT. ($25.00. It wasn't one of the cheaper options.) The game was full of ads for offers costing real money, yes, but my fingers managed to tap actual buttons and move my thumb to the home button at the right time. I couldn't tell if this was more impressive or scary. It was...shocking... for sure.

It's kind of like my unconscious side is learning how to do more and more on its own, and I'm going to have to kid proof (can't think of a better descriptor) things so I'm not cleaning up its messes later. (I guess I already kind of do this with emotional splitting, which doesn't seem that different from doing things in my sleep from this angle.) I'm also finding it way too interesting because brain-related stuff like this is right up my alley. And even though living with narcolepsy (though some people may have these experiences without it) can be H A R D, it's also comparable to living in multiple realities at once: hopping between them without much control, not knowing which reality a memory came from, having to piece together what actually happened, and, in a way, having more experiences that aren't linked chronologically... but through thought processes the brain has created a path between. Basically, it gives me something to figure out and is making me more familiar with how brains can work.

If this doesn't end up making sense, don't bother making sense of it. I can't really... "word" right now, and when I come up with a word, it feels off, and I'm unsure about using it. Basically, everything is a mess. I thought it'd be better to get something out now then forget this ever happened another day and not record it.

-Okay, you can stop explaining yourself now.
cathugger: Muichiro Tokito from Demon Slayer smiling. (Default)
Things have been going downhill mood-wise. I think I need to get out of the house, but even outside the house feels so limited. And since I'm already outside the house, how much better can anything get? 

Anyway...

I woke up during an intense dream (what's new?) where I was being chased and started falling down the stairs, grabbing for window shades to catch myself or break the fall or something. (I agree, there could've been better things to grab onto.) So there I was, hanging on the shades. After a few seconds, I thought I'd look below me, especially since the shades could've broken any second, and... saw my bed. I wasn't even hanging; I was sitting on my bed and pulling at the shades. I quickly let go so I wouldn't break them (good thing I'm not strong or heavy) and... let myself process everything for a few minutes. I'm sure there was some giggling mixed in there, too. 

Well, remembering that helped my mood a little.

It can be really confusing to find the line between doing things in your sleep and hypnagogic hallucinations. Often, if I'm doing something that that specific and intricate (sitting up and grabbing onto something that was to the side of me because of specific events in a dream... even pulling at the shades), it means I'm further on the awake side. So the dream might've been halfway woken me up and continued in a hypnagogic hallucination. Was I sitting up and grabbing at the shades before I opened my eyes, so the dream was existing without vision to aid it, or did I open my eyes at some point and see the shades while the dream tried to fill in the details? (This probably makes no sense. Don't bother reading it again.)

I'm wayyy too interested in dreams, though I've never spent much time looking into them, unless we're counting the sleep phase sections of psychology classes and narcolepsy research. But I've read about weird occurrences like this with narcolepsy. Apparently it's much more common in people who have the disorder (and possibly other sleep disorders), though everyone can get them, and there isn't always a diagnosis behind it... at least based on what I've read so far.


cathugger: Muichiro Tokito from Demon Slayer smiling. (Default)
I didn't think that Vyvanse was helping that much, but switching from 50mg once a day to 30mg twice a day seems to be making a huge difference. Falling asleep is even easier than it was before, and being depressed, I've been taking that to my advantage. Now, when I'm stuck at home for most of the day, I spend a lot of time sleeping. I guess I got used to the effects of the other dose because I don't remember fighting quite this hard to stay awake, even when I was unmedicated. At least this shows that something is working. I need to contact my psych nurse (who seems to know more about narcolepsy than my sleep specialist did), but I've been lacking so much energy and motivation. Since much of my depression seems dopamine-related, I might be going downhill in that area, too. I don't think the adrenaline rushes have been that bad since changing the dose, though.

January 2021

S M T W T F S
      12
3456789
10111213141516
17181920212223
24252627282930
31      

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jul. 4th, 2025 01:07 pm
Powered by Dreamwidth Studios